Thursday, May 15, 2008

Day 3...


Things aren’t going easily as first of all, sleeping seems to be a little of a problem with the constant heating up of the body from either the radiotherapy/chemotherapy side effects or the control drug that I am taking every day (at least there isn’t the anxiety that comes along with it with the change of the drug that I took --- that feeling can make you go crazy, you can’t even make a single decision at all).

Eating is also becoming a problem as in addition to my not so good appetite, my mouth lining seems to be degrading too and apparently it’s only going to get worst.

And I don’t know what’s causing it, but my head seems to get dizzy real easily. And my stomach feels nauseous at the worst possible moment --- when I want to eat.

I guess all I can say now is that my body is really really tired. It doesn’t come as a surprise as the radiotherapy and chemotherapy treatment that was given is strong enough to kill my own marrow.

Then again, it is… in a way easier than I have imagined. I remember clearly what I have read and it says after the transplant it makes some people bedridden for like a week or two and need to be fed through drips. Well, at least now I still can eat with my own mouth and wake up and stay awake without feeling any fatigue for at least an hour plus. And I also read that one would be prone to infection for at least like 3 months, but the doctor said that around 10-14 days the donor’s white cell will start to be produced in my body and that eliminates it. Though of course, with that comes along with it the graft versus host disease, but let’s leave that for later.

So, in a way I thank God that it isn’t as horrific as I have imagined. Staying in the same room for 3 months and being haunted by almost any infection will make anyone insane I guess.

Counting from the day of my transplant this will be day 3, with day 0 being the day of my transplant. The condition of my mouth degrading and all will only worsen till day 6 and after that it will start to get better with the donor’s marrow kicking into high gear; but with the donor’s marrow active that causes the graft versus host disease to start too. Really need to pray to God on this as only now He can do the things we can’t control at all, which is to allow my body to sustain and not degrade, especially my mouth lining till pass day 6. And after that I will need to pray that God will keep me from any harm, especially from the graft versus host disease, that it will be just a mild one to be in favour with the treatment.

Nothing left to do but to hope in the Lord, who knows our every need and is faithful.


Anonymous said...

Oh, how's the mouth now? Is it because it's dry or because of mouth ulcers or something else? You could ask if antibiotic mouthwashes are available, just to let you know. Take care! Rebecca.

chris said...

glad to hear that things are going easier than anticipated

Anonymous said...

hey lup wai here again. Sry i lost my sim card so my previous number cant be reached. I'll b goin bac msia for holiday, will come back at end of july. i'll give u my new number by then.

ju liang said...

to rebecca:

Woah, haven't read the comment section till the point that i guess my new post have answer that question haha. Sry about that.

Well the mouth was dry and also due to the mouth lining not being able to recover due to the treatment, but yeah, did use an antibiotic mouthwash.

Nevertheless, praise the Lord that all was well.

ju liang said...

to Chris:

Yeah, God has been really faithful and kind to me!

ju liang said...

to lup wai:

Alright then, hope to be able to contact you soon by then.

Anonymous said...

Sorry i'm late, too late.
my new number is 81207173.
i will remember the day we went play pokemon card together, and the photo i help u took on prefect bridge still with me.
u taught me a very pain lesson - never procrastinate.
u'll always stay in my mind.