Wednesday, March 28, 2007

not so dizzy... yay!

When to the hospital last Monday for my chemotherapy treatment, though I really dread going there nowadays I didn’t thought too much about it then as I assume that the treatment was an easy one. Well that’s because I couldn’t remember what terrible side effect it gave me the last time I had it, in fact I couldn’t even remember I had when through this treatment till I reread my blog as I am typing this (http://forgiven-by-grace.blogspot.com/2006_06_01_archive.html , read it for treatment details). So, it was only when I reach the hospital where I suddenly had a hunch that this was the one that gave me the headache and dizziness that knock me out for a month. Tried reconfirming with my mom and ask her if it was during the World Cup season last year that I gone through this treatment and became very dizzy, but she said it wasn’t during that time… well she said her own journal didn’t recorded as what I have said and that made me even more confused. But I proof her wrong with my blog buahahaha! Then again, I always write my post late, sometimes even 1 month late from the day of treatment, so I don’t really know either, woops!

Though the dizziness could be countered by just lying flat on the bed, making it not as terrible as feeling nausea, it is terribly boring as I can’t do anything much except sleep (since I am already in bed) or playing the guitar blindly perhaps.

I was even more assured that I was going to get the dizziness when I got home from the hospital on Wednesday and had to sleep earlier than usual because if I don’t I was going to puke from the dizziness. And besides that, I got dizzy just by crossing the sea on ship- only that it’s my Warcraft character that was crossing the sea and not me in real life… talking about game realism.

That’s why I really thank God that even as Sunday came; I didn’t experience the terrible dizziness that made me unable to move and was able to go the church. Phew… thank God for His amazing grace, for not letting me suffer the boredom of not doing anything at home! Truth to be told, I still feel a little dizzy time after time, but that’s pale compared to the one I experienced before, at least this time it doesn’t affect my daily activities much.

Oh, and I realized that the dizziness and headache wasn’t caused by the LP procedure, in which I suspect it was the last time I had it, but by the 45 minutes white chemo-drug called cyclosamidite or something like that, well it sounded like that I guess, too lazy to go check, give me a comment if you really want to know. Easy to know as this dizziness only happens when I have this chemo, and not when I have the LP procedure, this means that I don’t need to be so afraid of the LP procedure anymore and try to lie down on the bed as long as possible in order to avoid this side-effect, phew.

I also realized that I don’t understand what my doctor wants. Well, he said that he’s going to knock me out completely with general anesthetic while he was going to do a prick to check my bone marrow, and he kept telling the nurse to make sure that this time I was completely out before he does it, as last time he didn’t do it. Well, I could feel the anesthetic drug going in, but I realized I still wasn’t completely sleeping yet, could hear voices from the doctor and see the nurse still standing beside and some student nurses trying to learn the procedure. The doctor was like: “Harh? Still not sleeping yet ah?” I thought he was going to give me another dosage of anesthetic, but I realized that he already prick me and close the wound with the bandage. I was like: “What the…” I was semi-awake then, and it was only during the LP procedure when the other doctor asked me if the procedure was painful or not, in which I replied yeah, and he said: “I thought last time you said not painful”… and after that I kind of knock out. Then again, no complaints as I couldn’t feel the pain already then and the main doctor said that this time the prick isn’t as painful like last time because he doesn’t need to go through the bone again or something like that (forgive me, was between sleeping and being awake then). It’s really weird… I can remember I was replying to the doctors, but I just simply can’t remember completely what I replied to them. The way I reply them was like how anyone would do it when they want to sleep longer while their mom is nagging them to wake up:

Mom: Boy ah, wake up!

Son: ughh….

Mom: What you want to eat for breakfast? Hot milo and half-boiled eggs?

Son: ….. give me half-boiled milo and hot eggs lah…

Mom: Harh?!!!

Son: aiyoh… the usual lah… ZZzzzzZZZ…

Yeah something like that.

This may sound weird though, but somehow I am starting to love general anesthetic. Not loving it as the kind that makes you go: “Woah, I am seeing colors… stars… am I in heaven?!!” but loving it because it really helps to pass the time while I am in the hospital. Yeah, the thought of having to drip the chemo for 24 hours is terrible and as the time passes I slowly feel like vomiting… ughhh, and having the anesthetic cuts the time like by 6-8 hours since I get knocked out. And as I am doing the LP procedure I don’t need to feel the pain from the local anesthetic injection which the dentist always say: “it’s only an ant bite” but you know you want to poke him with it to show the dentist how painful it actually is (okay, now I am starting to sound like a spoilt brat, well, the local anesthetic isn’t so painful lah, just exaggerating).

Ah, really thank God that the nausea’s gone as I am writing this and me not having the super dizziness. Really thank God also for protecting me all the way through the treatments, I just have one more chemo-treatment in the hospital and I should be off by then, which is comforting in a way ha-ha.

Then again, I am starting to get reeeaallllly lazy to study or do any work. But it’s still better than going through treatment I guess. =)

Thursday, March 15, 2007

Gospel Camp 07...

Phew, thank God that I sign up to attend the Gospel Camp instead of staying at home all day long during the weekend. Was actually starting to regret when I found out that the camp was a week from the day I registered (well, six days since it was already Sunday then) and not two weeks apart which I thought it was as I needed time to cure from the nausea I was getting from the pills I was eating. But since I already paid the money before actually knowing it, I decided to just go for it as I was too lazy to ask for a refund or anything like that. Got to remind myself once again not to be so blur…

Well, really thank God again that it took only 2 days to recover from the nausea, which makes me think that maybe the nausea feeling is just all in the mind, for if I needed to do something of importance it kind of disappears faster, then again it may not be as there was one time when I followed my dad to KLCC to watch MI3, I spend most of my energy just trying to remember where the rubbish bins are so I could vomit in them if the nausea gets too bad (I remember I was thanking God that the rubbish bins weren’t the push to throw types but a big hole right on top, so I can vomit straight on it)… so maybe it was the fresh sea breeze that helped speed up the recovery. But to avoid all confusion and uncertainties, I say it was another of God’s miracle.

I made myself look like a social outcast in the camp as I didn’t join in any of the games, and I was too lazy (once again) to explain to the other people that didn’t know of my condition. There were some games that I know I could play, but I was afraid that there may be certain “accidents” that may happen (like a flying ball that came out of no where because someone doesn’t know he has Hercules’s strength) and cause a fatal blow to me. Besides that, I was literally burning from the sun though I was under the shade of a tree… makes me wonder how in the world am I going to play at the beach under the hot sun ever again. And though I was sitting down most of the time, I was as tired as those who played all the games all day long… in fact, I could actually feel my legs getting cramped… just by sitting down and not moving. Playing beach soccer barefooted wasn’t any good either; one good kick at the ball and my big toe was bleeding… I was about to ask what in the world happened to my body.

Then again, not being able to participate in most of the games wasn’t a problem at all, somehow I did not feel bored… not with all those whacky things that seems to be happening to the youths all the time and the lame talk about Daniel-lism and all (go figure). Not playing the games also meant that I was free from a lot of responsibility, which makes this camp more relaxing in a way. That… and also since I wasn’t ‘alright’ in a sense, the boys in my apartment actually let me have my own room, though honestly I feel really bad about it as it seems I am hogging all the space (though I know the reason they didn’t want to be in the room is because they wouldn’t be able to stay up late at night as I needed to sleep).

One thing that I really enjoyed in the camp was the fellowship with the youths and Sunday school students, or friends, I must say, as even until now the way I talk to them is very not teacher-like, plus the fact that my brother is among the gang which makes it impossible for me to talk to them like how a teacher does. Can’t imagine how the teachers who have a 2-3 years age gap teach without feeling like one of his/her students. Having fellowship with friends is fun, though for me the ‘fun’ was greatly enhanced due to the fact that I seldom have such company.

I must admit though, I was completely clueless about the message during the camp ha-ha. Really wanted to use the excuse that I was sleepy and tired so I couldn’t hear the message but then it wasn’t like that at all… to me it seems like the message on the second and third day didn’t seem to connect, but maybe that’s just me, was cracking my head all day long just trying to figure that out till I decided to just put it aside and ask the other youths during the next meeting to save myself the trouble.

Though there is one thing that I really learn, and that is being a Christian really isn’t an easy task. I’ll be totally honest and say that at first it was hard trying to mix around with the outsiders, it’s like hard for me not to keep an eye on them and go “what the heck are doing?” But as a Christian, God says that we ought to love everyone (and not to judge them too) and not just our own group of people, meaning that we must go out of our comfort zone to mix around with the others as well. Didn’t do too well in that I must say, but thank God for the opportunity that came up for me to interact with the outsiders and get to know them. Hope when I get better I actually take the effort to have fellowship with the new comers instead of just hanging out with my circle of friends all the time.

It really has been awhile since the time I went to the beach and as I see the endless sea and the bright blue sky above it, I was really glad that I came. It isn’t a new or rare sight of the beach though, but then it really amazes me how God shaped the earth and all… so perfectly I must add. And just like what Daniel and I were talking during one of our lame jokes conversation: …and God saw that what He made was good… real good~

Tuesday, March 06, 2007

Another day...

Good news: Don’t need to go to the hospital, able to stay at home longer after Chinese New Year. Woo hoo!

Bad news : Got to eat chemotherapy pills for one week. Ugghh…..

Well, I thank God that at least this time around I didn’t actually throw up after food, allowing me to eat normally and not restricting the things I can do in a day, but it is still making me nausea and tire easily which is bothering me in a way. I don’t know if it’s the pills that give me these nauseas side effect or perhaps my fear of it which makes me chill to my spine whenever I just think of the pills or the smell of it. Not to forget, the pills are giving me freaking weird nightmares, can’t say ‘dreams’ as I hardly get one that is pleasant, well maybe just 5 percent of it is.

At least it’s only for 1 week this time… but to my horror when my chemotherapy treatment ends I got to eat it for at least 18 months. Trying to figure out ways to survive through that ha-ha, especially since I won’t be able to slack like how I am doing right now by then. One comfort that I have is that the terrible side effects of the pill lessens for each pill eating session I take (I think this is the fourth), praying to God that by the time I am released it wouldn’t be much of a problem anymore. Well, the doctor also did say that most of the patients didn’t have many complaints when they took it after their treatment end, so I guess that’s another comfort too.

About the nightmares, the 5 percent that was pleasant reminds me of God’s saving grace through Jesus Christ. I don’t know how Jackie Chan appeared in my dream and had a connection with that, but when I woke up it kind of reminded me that despite us being so sinful and unworthy, and God could just zap us from the face of the earth for He hates sin, yet He still love us and sent Jesus Christ to redeem us, forgiving our sins just like that and allowing us to enter His throne of grace so freely.

Trying to force myself to think that I have only 2 more days of pill eating left from today, for if I remind myself about the 18 months more to go, it will definitely wear me out even before the battle begin.

*

As I have mentioned, the side effects of the pills weren’t so bad this time, so I managed to drag myself to Midvalley to go shopping with my mom. Of course they were the occasional “want to vomit” signs as I walk around, but thank God all of them were controllable.

Well, this is the first time since I got admitted to the hospital that I actually do some serious shopping. Though mom occasional did ask me if I want to go shopping last year I mostly turn her offer down due to the fact that I realized there’s no point in buying new clothes and all, like I have the chance to wear them in the hospital ha-ha.

Going shopping today was refreshing to say the least; it’s something I haven’t done for a long time, though of course it did remind me of all the hassles about shopping, like picking your size for the clothes you want etc. Thank God that at least the designers were smart enough to design ‘what you call it’---- in-built strings around your waist that act like belts (I have no idea what you call it) --- for pants so that you don’t really need to buy pants that are exactly your size as you can just tighten them with the ‘strings’ if it’s too lose. That saves like a whole 5 minutes in choosing the pants you like (yes 5 minutes in shopping is a lot), and if you don’t have the size of your pants… who cares??? Just tighten them and off you go!

Another plus was due to fact that since today wasn’t a public holiday, and most schools are having exam, the mall was really quiet… something that most people couldn’t enjoy nowadays as all the students seems to flock endlessly to all the shopping malls whenever they have nothing to do, and most of the time they have nothing to do. What happened to the days when the cinema actually belongs to you and your friends alone? Having less people meant that you could enjoy buying your stuff like the place belongs to you, no queuing up at dressing rooms, counters, or trying to grab a shirt inside a mob, man this is the life!

Then I went to the sports shop at the top floor of Midvalley to buy new shoes in order to replace my 2 year old one. There was this like SMS contest where if you manage to answer the questions given correctly you will be able to get a 20 percent discount on the items in the shop and the sales girl asked us to join it as it’s really easy. Hmm… how easy? Most of the time these contest are just a con to waste your phone credit (One message cost a Ringgit). But as my phone credit worth is more than my handphone I decided not to think twice and just followed the instructions that the sales girl was saying to enter the contest:

Sales girl: Tekan… *something* dan *something*…

Me : Oh... send ah?

Sales girl: Yeah send…

Me : (Beep!) Oh, got reply…

(There was a question… I think, I couldn’t even read the message and before I could work my mind to think what the answer is to the question or perhaps what the message was… she asked me to let her see the message)

Sales girl: (Looks at the message) Okay, sekarang tekan *something B*, *something C*…

Me : (Thinking in mind) Wah can trust her or not wan, maybe she just wants to waste my money, I haven’t read the question man…

(Being so easily tired from the pills I decided to play the just listen and do roll and type the stuff requested)

Me : (Beep!) Ada message lagi…

(Shows her the message on the phone again)

Sales girl: Boss!!! Motorola Z3 apa model?

(I think the boss told her Rzor, but later I realized the answer to that question was on the contest promotion sheet as well)

Sales girl: Okay sekarang tekan, ini ini ini…

Me : Oh… (beep!)

Sales girl: Okay, sudah ada discount, pergi beri cashier tengok…

Woah, okay, so by wasting 3 bucks I saved 40 bucks… not too bad eh, and I am in the running for a Motorola handphone, some goodies and unlimited free Coke for a year. What surprised me is how come the shop staff just gave the answers so freely like that? They want to fully utilize the contest sponsors money is it?

And I finally manage to buy an overdrive pedal as I went to Midvalley to make myself look more “pro” when using the guitar, as I still have almost to none knowledge of how to fully utilize it. Though it was embarrassing that a less than 2 minutes set up of the pedal took me more than 15 minutes due to the fact that I put the input and output cables wrongly. Not too bright for a PA personal in church eh?

Ha-ha, all in all, was really glad that I was able to do some “normal” stuff after a long time, thank God for giving me this privilege to go out.

Tuesday, February 20, 2007

Chinese New Year Post...

Woah kay, HAPPY CHINESE NEW YEAR! Though I can’t really feel the holiday ‘feel’ due to the fact that I totally lost track of time since going through treatment (the reason will be explained later in this post), yet I must say this few days spending at home has been really enjoyable.

Hmm… it’s been a week plus a few days since I got discharged from the hospital, didn’t update sooner as like I said, was too engross on enjoying my time at home. God has been really GOOD!

I really thank God for lots of things. First of all would be the fact that I didn’t get the sore mouth side effects. During my treatment at the hospital I was going “Oh No!” as I felt the mouth cell lining slowly deteriorating, meaning that sooner or later it will start bleeding and it’s going to be really painful. Thank God that as I got discharged and stayed at home the sores didn’t appear, and because of that I could really relax and enjoy my time at home. Besides that, need to thank God that the nausea didn’t lasted for weeks like last time but only just a few days since the time I got discharged. Without those two side effects it meant that I could eat anything to my hearts content… Ah, what joy of eating unlimited food…

Don’t know why though, but whenever I have the second round of yellow chemo, the side effects won’t be as severe as the first. The last time I had the yellow chemo it was the same thing, terrible the first time, not too bad the second time around. Hmm… but the doctor usually reduce the dosage of the chemo whenever I take it the second time because he says it’s too much for me to handle, and if he uses the same dosage I might get knockout instantly.

Then again, maybe the doctor did not intend to reduce the yellow chemo dosage this time but he did so anyway because he got the wrong blood report.

Yeah… wrong blood report…… WHAT IN THE WORLD???

It is freaking scary to know that there are mistake like this made in the hospital. This time though, I cannot say it’s the doctors fault for the person who produce my blood report was at wrong. Instead of faxing the latest blood report to the doctor, he gave him the previous one instead… the one where I was admitted to the hospital because of the low platelet count and all (no wonder the count looks so familiar). So, obviously my blood count would be lower than normal as that blood test was taken right before I was discharged from the low platelet count incident. Because of the low count, he decided to give me a lower dosage just in case my body collapses as it is too weak.

Well, it was only much later that the blood report dude or dude-dess realized his/her mistake and fax the doctor the latest report, which reported that my blood count was like any average guy. But since I was already undergoing the yellow chemo on the bed, the doctor just told me that it was alright. If he told me that I need to do another chemo, I would have definitely gone berserk there and then, as I really dread that chemo which lasted for a day. Just thinking of it makes me want to vomit.

So, that may be a good thing as perhaps of the low dosage I didn’t get the side effects as bad as before or maybe it was because I had more pholinic acid (don’t know how to spell ha-ha) which prevents the side effect; then again it may be bad as a lower dosage may mean that the chemo will not be doing what it is suppose to do at it’s best with that kind of dosage. Whichever the case, I guess it’s up to God’s grace in the end. Despite the fact that there may be many different reasons on why the side effect wasn’t so bad this time, I know one thing for sure -- it is definitely due to God’s grace that I didn’t need to suffer the side effects so badly this time, and it is only by His grace that I hope the low chemo will not jeopardize the treatment.

*

So… why did I say I don’t feel the holiday ‘feel’ anymore? Basically since I don’t go to work or school or have any responsibilities (except going back to the hospital on due time and eating the right number of pills everyday), everyday becomes the same day to me, everyday IS a holiday, and that made me completely lost in time somehow; maybe besides Sunday when I have to go for church and later to my grandmother’s house for dinner that I break my routine every once in a while. Of course, if somehow someone can trade his school time with me and I trade my treatment time to him I would definitely agree, going through chemo is just not worth for all those holidays, ha-ha. Some may say that having a super long holiday may seem super bored, but to me, being able to have a holiday at home and not going to the hospital is already more than enough, so I never get bored, as it is much better than going there.

Getting lost in time also made me feel that somehow I am still 18, and it seems like I haven’t grown matured at all as I have lost contact of the world since I stayed indoors most of the time. Yeah, you may say that I can go online and read about the latest hype around, but reading and actually seeing it outside with your own eyes is two very different things. To me, it seems like I am still stuck in time, that the holiday I am having after college and before university seems to be just very long.

*

Ah, but I must say it was pleasant today as I was healthy and strong enough to play DoTA at a cyber café (yeah, who said you only must be strong and healthy to play sports and not computer games) with my younger bro, Zhi-Yong, Noel, and Daniel, and winning all the matches with all of us being in one team. It’s been a year plus since I entered one, as most of the time I will pass out on the offer being too tired all the time from the treatment. Playing today reminds me of the times during college where me and my classmates go for our “club” where our sole activity was playing at the cyber café every Friday after lessons. Saying that it was a “club” was a good idea as it allows us to escape all those talks about stress, managing time, BGR (by telling our teacher we have club activities) which was always held on Friday in college somehow and which our homeroom teacher kept encouraging us to attend till we got afraid of it. Though our ‘club’ did attend one of the talks at the end, as I think back I feel really guilty for not attending the other talks due to our “club”.

Ha-ha, but then again, it seems like we are pretty sad people who plays DoTA during Chinese New Year and not spending it visiting our relatives of friends… hmmm… or maybe since we are playing together it is like having some sort of fellowship… though most of the time we go:

BACK BACK! B LAH!

ATTACK LAH, DUN SCARE, ATTACK!

STUN LAH, WHY DUN WANT STUN!

FASTER SPIN FASTER SPIN! WHERE YOU SPINNING TO! … haiyoh….

ZUES! ZAP! WRATH! SHOOT LIGHTNING! DO SOMETHING!!!!

WHY U KS?!!!!

[Hero’s Name] MISSING!!!!!

DUN RUN LAH WHY U SO CHICKEN?

Yeah, I guess there isn’t much conversation at all ha-ha… still we had a really fun time I guess, woot!

Sunday, January 28, 2007

Deja Vu...

Have you ever had that feeling where the things that are happening around you reminds you that something bad would inevitably happen?

I did.

Around 3 in the morning on Sunday, I had this same migraine feeling which I had before I was admitted to the hospital for leukemia. The funny thing of this migraine is that it does not get better even if you try to sleep. In fact, you won’t be able to sleep, but keep tossing and turning with the pain on one side of your head. And once or twice when I did manage to sleep, nightmares and dreams kept bombarding me till I awaken once again.

Because of the lack of rest, I decided to stay home and sleep, and couldn’t go to church… thinking that perhaps when I wake up in the afternoon I would feel much better. But it didn’t.

It was exactly like what happened to me during the time I already had leukemia during early December, but haven’t been diagnosed with it yet. Then it was also a Sunday, had the same migraine that couldn’t go away with sleep, so I took Panadols as a desperate measure to get some rest as in the morning I had lots to do at church. Drag myself out of bed around 8 in the morning as I needed to go for Sunday school worship practice, but realized that after playing for the actual worship I cannot take the pain anymore and decided to go home and rest despite the fact that I needed to play the bass for English Worship later (the advantage of playing the bass guitar, you can come and go as you please ha-ha, unlike the pianist).

Well, the pain did not go away then too, even when I slept through the whole afternoon. The pain from the migraine only went away around midnight, almost a whole 20 hours plus when I first got the headache. And that’s not all, even when the pain goes away; I actually still feel something at the part where the head aches during the migraine, as if the migraine can come back anytime to haunt you.

So on Tuesday when I visited the doctor for a check up, I was kind of worried and started to pray to God that everything would turn out okay. The whole same symptoms happening again thingy keeps reminding me that maybe I had a relapse. If last time I had these symptoms and was later diagnosed with leukemia, why can’t it happen again?

Even in the doctor’s clinic, all wasn’t going well. The nurse tried to draw my blood through my left hand but couldn’t seem to do so even though she did inject the needle to the vein. Tried the right hand, same thing… so the only way to draw some blood out was to press my arm like some kind of pump, where each press I could see a few drops of blood going in the injection… crazy. After a few presses, thank God that at least enough drop of blood was taken to be able to do a blood test.

When the blood test report came by fax to the doctor, I (and the doctor) was kind of shocked that my blood platelet was only at a count of 7. The last time when I was first admitted to the hospital my blood platelet count was 8, which would mean this was way worst. Darn, I was starting to feel really scared then, please don’t tell me it’s a relapse.

Now that explains why a simple scratch wound that I had couldn’t stop bleeding for like 5 minutes, and the many internal bleedings all over my back and hands, and the wound inside my nose that can’t seem to heal up right, and I was feeling cold always. The doctor immediately issued me to be admitted into the hospital to get some platelet transfusion before I bleed myself to death. I was really frustrated in the beginning as I really didn’t want to stay in the hospital so soon again. But now after staying for 3 nights in the hospital, I really thank God that I was admitted, for if I don’t, firstly I can actually get knock out with the fact that I couldn’t heal up my wounds and secondly, in the hospital the doctor gave me more folinic acid injection which helped my mouth sores to be healed more quickly, giving me more relief with less pain in my mouth.

And it wasn’t all that bad, when I was admitted my elder cousin Ju Xing actually came to visit me. It was a surprise as I didn’t know he was on a holiday break from studying in England. Well, we manage to have a great chat and that seemed to lift up my spirits.

But the relief only came when the doctor check up on me again in the afternoon on the day I was admitted. He explained to me the whole situation and at the end of it, I asked him if it was a relapse or does it in anyway point to that direction. Thank God he said it’s none of that, and the cause of the blood platelet dropping was because of the chemotherapy I had 2 weeks ago. Poof! Suddenly a huge burden seems to be lifted from me, for somehow most of the time, the hunches I get mostly comes true… and this was one time I hoped it wasn’t ha-ha.

Thank God for His grace and mercy once again.

*By the time I got home and post this it has already been 5 nights, couldn’t get an internet line in the hospital ha-ha. Well, honestly speaking, was again really really frustrated by the fact that I can’t go home sooner, but I always try to remember that the Lord has His way in the thing He does. When trying to learn patience, God puts you in a situation where you need to be patience, so that you’ll really learn.

Tuesday, January 23, 2007

Ouchies...

The things that happened last week:

I think it was a Tuesday, when elder brother got home quite late that night and seemed to be more pissed off compared to whenever Manchester United loss a game. Well, he did have a reason to be so pissed off; someone broke in his car when he went to 1-Utama. Though it was a big commotion, somehow I still was too lazy to actually see how the thief broke the back windows of the X-Trail and stole my brother’s schoolbag and laptop bag, so I have no idea how damaged the car was (hmm… in fact even after a week I have no idea how the car looks like after the repairs, haven’t gone out the house since I got back from the hospital). Well, thank God that the car wasn’t stolen at the least… when brother said that his car got broken into, I was like: “You mean they stole the freaking whole car?”

Well, despite the seriousness of the whole matter, it reminds me of the time when teacher Derek called when a thief also stole his laptop from his car:

(Can’t really remember the exact conversation, but this was what I thought I heard)

Teacher Derek: Ju Liang, today my car got broken in two…

Me: WHAT? BROKEN IN TWO?

Teacher Derek: (in a calm, serious voice) Yeah, broken in two.

Me: My goodness!

(In my mind I was thinking… how in the world can he survive an accident where his car has broken in two, and better yet, with no injuries and acting so calmly)

(Just before I open my mouth to utter something to make myself looks so foolish…)

Teacher Derek: Yeah, a thief broke into my car and stole my laptop; I was hoping you have a spare laptop which I can borrow. (I think it was something like that…)

Me: Oh? Errr… wait ah I go check first…

Well, if I remembered correctly Daniel Mok also said that he was thinking about the same thing when teacher Derek called him for this matter.

Nevertheless, really thank God that at least brother wasn’t harm then, or the car was stolen, otherwise it could be way worst.

*

Well, I said that I did not come out from my house since I came back from the hospital, not because I am some World of Warcraft geek who has no life and play online games till my character becomes all powerful and mighty (see the South Park: World of Warcraft episode to know what I mean) but mainly because of my nausea and now my mouth sores which prevents me from going outside. Really thank God that the nausea feeling when away around the middle of the week, but that was when the mouth sores started to appear too. Still I must thank God as though the mouth sores hurt like needles poking all over your lips and mouth, yet compared to feeling nausea at least I can eat and move around more freely, though it is kind of hard to enjoy eating with that kind of pain.

The mouth sores are caused by the body not being able to regenerate the cell linings of the mouth, as the yellow chemo I was taking somehow destroys it too. And since there are no cells, it bleeds and can’t heal… really nasty sight when I wake up in the morning as it seems like I have put dark red lipsticks, only that the dark red colour is actually my own dry blood.

Guess I still have to wait a little longer before I could “enjoy” eating the food that I crave.

Another thing that I must thank God for would be the itchiness fading away. Somehow this time around it was like the blue chemo, whenever I scratch my skin I will have internal bleeding, which caused the whole back of my body looking really nasty with dark patches everywhere. At first I didn’t know how serious it was, but later I got to know that it was so bad till my younger brother thinks that my whole body looks like someone who just survived a war. At least now the dark patches seem to be slowing fading away.

Then again, at least there’s something to look forward to. With this chemo down, there’s just another 3 more to go, and I can finally have some sweet rest. Praying to God that all goes well now.

Saturday, January 13, 2007

3rd Yellow chemo...

Just got back home today and although I have already said this one too many times, but still I am going to say it again… there’s no where better in the world than home.

Staying in the hospital for the past 4 nights was terrible, although I must admit it wasn’t as bad as I thought it was, and I have God to thank for that. Still, the fact that the chemotherapy treatment this time around last 24 hours really is a torture, and the thought that I must go through this whole treatment in another 2 weeks or so is down right disappointing. This yellow chemo is the cause of all my nausea (starting from this chemo last year, I always felt nausea whenever I go for a treatment), and it really is frustrating as it keeps making me want to vomit; I am hungry but I can’t eat the food that I want as I cannot digest the food properly and the fear of throwing up keeps haunting me; sleeping isn’t all that good either as dreams will keep disturbing me and a slight disturbance in the room would make me awake and I need to go through all the trouble to force myself to sleep again.

Well, I really thank God for being able to stay at home as in the hospital I feel totally “trap” due to the fact that I am constantly on drips. Really troublesome as going to the toilet to throw up or do my business becomes really a hassle. At home the air seems fresher; a burden seems to be lifted up from me; and the best part would be there wouldn’t be any nurses or hospital staff who would disturb me while I am asleep.

Then again, suffering isn’t all that bad of a thing. It allows me to cherish and thank God for the many little things in life. For example: I really thank God during the times when I could actually eat food without fear of throwing up and also thank God for the times when I could just sleep so easily when I am tired unlike now. If I am healthy, who cares about those kind of stuff? It’s something so common and normal for most people anyway. And most of the time I take those simple stuff for granted, for instance: preferring to sleep really late at night when I could sleep early.

Ah, now I just hope that God would cure my nausea as fast as possible, as I really want to eat something tasty before I go back in the hospital again. Nando’s Chicken, KFC and pan mee ‘gon lou’ are the few food that I must try before I reenter the hospital. Drooling now, but sigh, can’t eat any as if I throw up while eating those food I will have a phobia of them forever.

Still, thank God for everything!

Tuesday, December 26, 2006

Christmas

Hmm… woah kay, so I finally finish writing up my November so called report, it’s really long, and I bet there’s many errors in it and a whole lot of fine details missing, don’t bother reading if it’s too troublesome (I know I won’t when it reaches that long), it’s just something for me to jot down so I could remember them next time.

Really glad that this time around I could actually enjoy the Christmas celebration and not be at the hospital, but then again, somehow I couldn’t have the Christmas ‘feel’ that I used to have last time. Maybe that’s because I wasn’t serving and being too involved in the church because of my condition, and couldn’t feel all the buzz like I used too. Which reminds me that maybe my previous Christmases were perhaps too engross in activities such as camps, caroling and the like that I forgot that Christmas is about thanking God for sending Jesus and not having the ‘feel’ from the activities and busyness. Or perhaps this is just another of my senseless ramblings.

Ah, I somehow realized that in everything I do I am always one step slower (or perhaps I just don’t take the initiative to do things faster or at least on time), and this is how I am going to prove it:

“MERRY BELATED CHRISTMAS!!!”

Full November Report...

First of all, really thank God that I am finally at home and not in the hospital anymore; for not getting any infections so serious that it became life threatening; and letting the days go by more easily compared to the last time I had this session of chemotherapy.

So… let’s see what happened during that month.

I was admitted to the hospital on November the 6th, that’s a Monday, and had originally planned to just have my lamba puncture done and nothing else that day in order to reduce the stress on my body. Somehow things always doesn’t turns out right with the doctor who does my lamba puncture and the nurses: well, the nurses said that the doctor doesn’t want to do the procedure because he had an MC that day and was not on duty (if he wasn’t on duty why is must he come to the hospital then?), on the other hand, the doctor said the nurses didn’t prepare the drug for the procedure that’s why he couldn’t do anything. Hmmm… so who’s telling the truth eh?

Because of that, the lamba puncture procedure was postponed till the next day, and I had my first dose of chemo (the white colored one) the first day itself at around five something in the evening. Of course I started to feel nausea and all, but it wasn’t as bad as I thought, really thank God for that. Just when I was starting to feel comfortable and think that everything would be going alright, the nurses told me that after 12 hours I am going to have another dose of that chemo (the white one). I was like: “Huh? I thought only got 4 white and 2 blue last time wan? How come now different.” Tossing and turning around the bed that night because I thought it must be some mistake, I decided to walk out to the nurse counter and double check with the chemo drugs I am suppose to take for the entire week.

The first thing the nurses asked me when I was looking at the chart that contains my medical details was: “Boleh baca tak?” My goodness, for the first time I truly understand what they meant by ‘doctor’s handwriting’, and it gives me a new respect for all the nurses that could understand this ancient text. It was so hard to read that if I become a kindergarten teacher, teaching a class of 3 years old student, I’ll give them all an A++ for their handwriting. Basically the chart was filled with lots of signatures and scribbles; I manage to decipher a few facts, but most of it was translated by the nurse who was in charge then. Guess I was wrong about the chemo and it really was 2 white chemo a day for 4 days, which would be 8 white chemo and 2 blues then for the entire thingy. That truly was demoralizing though, it means that I would have less rest in between the days.

The second day, around noon time I had my lamba puncture. Thank God that all went well this time without any complications or side effects; otherwise it would really be unbearable. The only problem is that the doctor is starting to pester me to write a testimonial and you know how lazy I am (he already asked me to do so the last time I had my lamba puncture). Well, it’s for a good cause actually; it’s to comfort those first timers who are doing their lamba puncture to assure them that this treatment does not hurt, except the part where they put the local anesthetics of course (although somehow it seems to me that he’s trying to promote that he does lamba puncture best compared to the others ha-ha). Not that hard of a task to write a testimonial I suppose, but somehow I am just too freaking lazy, but I know if I don’t do it soon, the next time I see him, he’s going to lecture me again… oh no~

During the 4 and a half days of chemo (the half was because the last chemo ended at around 5 in the morning on Friday), I totally lost my appetite because of the nausea feeling and was always dehydrated and really tired. But amazingly, despite all the suffering of feeling nausea, need to thank Christ Jesus our Lord as the side effects wasn’t too hard for me to handle, miraculously. Vomited heavily twice I think (first one was around the middle of the week, while the second and final one was around Saturday or Sunday of the first week, which after vomiting I felt much better and my appetite started to return). Thank God that it wasn’t the food that came out both times but errrr… the acid from the stomach? Or a mixture of water and errrm… sour stuff… That’s because if I actually vomited the food out, and since I only eat like bread for lunch, and mee soup or porridge for dinner, I would have zero nutrition and that is bad because my body won’t have enough energy to actually repair the damage done to my body and give me the strength to move about.

One thing that really annoyed me during the first week of my stay in the hospital was the fact that the nurses need to keep a record of my food and drinks input and my errm… output (I think you know what I mean).It wouldn’t be much of a problem, but when I only wake up around 1-2 pm (which is the time they do their record) and they asked me what did I eat starting from 7 in the morning, in which I answered nothing because: “I was sleeping and just woke up when you came in”, they will start giving me a lecture of why I must forced myself to eat and drink etc. or give me that worried look that pressures me somehow. They were some that actually understood the reason why I didn’t eat or drink well without me explaining to them, but some… sigh….Well their intentions were good, but ‘hello’, I know I don’t have such a good appetite because of the chemo, but I told you I just woke up, how can I eat and drink in my sleep, and go to the toilet… I don’t walk in my sleep sister! Because of that sometimes I just eat a piece of bread and a cup of water when they first wake me up to do their temperature check around 7-8 in the morning, and go back to sleep, just to avoid the lecture, or the worried look on their faces that makes me even more stressed up. Why don’t you just lie to them you may ask… would love to do that, it’ll minus the hassle, but then again, I am not a medic student nor a doctor, and if I don’t take their advice it might cost me my health. And the thing that would annoy me more than what I have mentioned would be the nurses telling me straight at my face: “I’ve told you so.” Thank God that when my white cell count dropped really low they stop doing this recording as the doctor wanted me to have minimal contact from the outside in order to prevent me from getting infected, thus the annoyance ended, phew.

For those who are wondering, I wake up around 1-2 pm not because I watched too many late night movies (I sleep around 10-12 pm the first week), but it’s because firstly my body needs a lot of rest to regenerate, and secondly by sleeping I actually reduce the amount of time I need to suffer from feeling nausea and all.

Feeling nausea and tiredness was the first effect, the second side effect started around the fourth or fifth day after the chemo (or was it right after the blue severe chemo… can’t remember), in which rashes (deep blood red color marks on my skin, it’s somehow like internal bleeding) started to appear on my body (my hands, stomach, thigh, legs) and it really itches if I somehow manage to disturb it (in which I will always do as my skin would definitely touch something). The first week wasn’t a problem when I still had my white cells at a safe level, but during the second week on Monday which my white cell count dropped to 0.5 percent, a simple act such as scratching was a huge problem. If I accidentally scratch too much and made it bleed, it could get infected because of the wound and that could cause a huge load of trouble. Plus the fact that my blood components (which I think is due to the platelets, not sure though) dropped to an all time low, scratching the rashes gave me internal bleeding, which made dark red dots appear on the rashes. This really thought me self-control ha-ha, as I need to keep resisting myself from scratching the rashes in order to protect my own body. Well I assumed that it was the low amount of platelets that contributed to the internal bleeding because whenever I had packets of blood platelet (4 packets normally, I think I had it 2 times for this whole treatment) transfuse to my body, the red marks of the internal bleeding starts to fade away, then again I might be wrong ha-ha. Even after a week since I left the hospital I still have some mark of the rashes on my hands though, the last time I had this treatment I think it took months for it to go away.

*This paragraph is a little disgusting*

The third side effect was constipation. I was really hoping that I would at least pass motion while my white cell count was up, and I was expecting the white cell count to drop after around seven days from the day my chemotherapy ended, should be a lot of time I thought to myself. But… frustratingly my white cell count dropped to zero in just 3 days from the last chemotherapy, and only during the next day when my white cell count dropped to a big zero (2nd Tuesday) must I ‘do my business’. As most of us know, when one has constipation and finally needs to ‘do his business’, the stool would be incredibly hard and that caused my anal to tear and bleed (due to the insufficient blood platelets, it took a longer time to allow the wound to stop bleeding, the toilet bowl virtually became the red sea, imagine that) plus me having hemorrhoids because of that. Wouldn’t cost much harm to a normal healthy human being, but because of my low white cell count (again, blame it on the white cells), the wound that was caused from the tear would later gave me an infection (which I did not realized at first, as I couldn’t feel the ‘infection caused by the tear’ feeling which I had the last time I was on this treatment).

During the 2nd Tuesday another annoying thing started to happen, despite the fact that I was totally isolated since the 2nd Monday when my white cell count dropped to a dangerous level, and there was a sign outside indicating that fact (I think, the last time they put that, got to ask my mom again ha-ha), there were still clueless people that come in my room looking for the person they are suppose to visit. First was some Malay bearded dude who apparently couldn’t understand words and numbers; if the person on the bed isn’t the person you are suppose to visit (and it’s really obvious considering I am a Chinese), and the room number is 719, which obviously is a single bedroom since there wasn’t a 719 A, B, C, D or 719 1,2,3,4, don’t lah walk until 2/3 of my room only to realize it’s a single bedroom and the patient isn’t the person you’re suppose to visit, in addition there’s the sign telling people that I am isolated, I mean you’ll at least know what’s the sickness of the person you’re visiting right? Goodness… was really paranoid then as I didn’t wanted any outsiders coming in because of the fear of getting infected by the germs they carry, even the nurses that check up on me who don’t wear their mask makes me go cranky (thank God that only a few times the nurses did that, otherwise I’ll become crazy ha-ha). Just when I thought that was the last, that night another lady with kids opened up the door, thank God that at least she had more intelligence than that bearded dude, she quickly apologize before even stepping in the room when she sees me. But then that wasn’t the end of it… apparently some weird delivery dude came and send me a bunch of flowers, not telling me the name of the sender or who he was supposed to send to. Being the paranoid boy as I am, I quickly ask him to leave the flowers at the door and said I couldn’t sign because I am isolated. He was considerate enough to allow me to escape without signing for that delivery. I was sure the flowers weren’t meant for me as everyone who wants to send their flowers has already done so the first time I was admitted to the hospital. Didn’t wanted to check it out though, as I was too afraid that the flower may be infected (paranoid again). So, when my mom came she too was surprised, and found out that the bouquet of flowers actually belonged to a girl name Sophia whose room is actually at 709 (or 790 can’t actually remember). No wonder there were unknown dudes that came popping up at my room… guess they couldn’t get the room number right because they were too lazy to ask the nurse at the counter.

Things started to become quite bad on the 2nd Wednesday. Perhaps because there were bacteria in the food I ate, or the fact that I got infected during the tear or perhaps someone who got close enough to me had some virus or bacteria on them, my body somehow got infected and started to have a high fever starting from around 3 in the afternoon. It took a really long time for the nurses to bring Panadols to me (around an hour), and that caused me to shiver and allowed me the privilege to suffer the coldness of winter in the comfort of my own room. During the night, upon receiving instructions from my doctor, the nurses began drawing my blood and injecting it to the antibiotic and later sending it for testing in order to ensure that the antibiotics would be effective against the infection. After around 3 hours, the antibiotics which was proven effective was dripped into me and that helped a lot because when I first ate the Panadol, I was only relieved from the fever for only at least 30 minutes and the fever came back (was really discouraged then, I was like: “WHAT! 30 minutes of relief only??? Don’t tell me this is going to be a really serious one”). Eating another Panadol and having the antibiotics later that night allow me to sleep till the next day undisturbed (the fever did not come back). And I really really really thank God for that, for His grace where I did not need to suffer so badly. The last time when I started to have fever during this treatment, it came non-stop whenever the effect of the Panadol wears off and the fever only settled down when my white cell was back at the normal level, and that was a really suffering experience. So I suffered the effects of that high fever only from 3 in the afternoon till 11 at night, and then I had rest… sweet rest for the next few days as the fever did not came back non-stop like last time. Because of me having this high fever, I was put on antibiotics every 6 hours to prevent the infection from becoming worst, and hoping the fever does not come back.

I knew it was an infection that caused the fever, but had no idea specifically which infection caused the high fever. It was only on the second Friday did the doctor told me that the high fever was caused by an infection of the blood from some bacteria. Where did the bacteria came from? I have no idea, as I have mentioned it earlier it could have come from many possibilities. The doctor assured me that the antibiotic was effective against that blood infection and need not worry much as the fever have subsided, meaning that it was a success. There and then I did not worry much about the infection, but later I realized that if the doctor did not gave me the proper antibiotics in time, and the infection had spread out to my entire body, it may have caused me my life. Woah! And there I was thinking that it was just something like the common cold or cough (but then again, any common bacteria or virus could have killed me, ha-ha). Therefore I really thank God for His grace and mercy and love, to preserve my life once again, and not letting me go (and the comfort of allowing me think that it was just something normal keke).

On that Friday night my beard hair started to drop too (was pulling it and it came off, don’t ask me why I do that). Just as my secondary classmate Harold once joke to me, that having my hair dropping because of chemotherapy isn’t a bad thing, as if anytime I think I need a shave, one swipe to the mouth and my moustache and beard would all be gone, viola, as easy as that ha-ha. Yeah, it does save ‘me’ a lot of trouble, but to the person who needs to clean up all the hair, it would be a mess. It was only during the 2nd Saturday that the hair on my head started to drop rapidly. It was a mess with all the hair dropping around my bed as I roll around my pillow and my towel whenever I try to wipe my hair dry after bathing. Was thinking of trying to salvage as much hair as possible and not shave it, but seeing how my head is becoming more like badly made crop circles and giving me a really sickly look because of that, mom forced me to shave my head using an electric shaver that I haven’t used in years. Got to give credit to my mom though, she did do a great job off shaving my head to become that of Zidane, thus allowing me to feel much more refresh with the completely shiny bald look, and not having that trauma of seeing how my hair drops whenever I pull at it.

On the 2nd Sunday though, my fever started to return and the frequency of getting it seems to increased as each day passed starting from that day, but still, I really thank God that most of the time it’s just a slight fever, and even if my body temperature rises too high, I don’t really feel the suffering effects of the high fever like previously. Just pop in two Panadol pills and I would have around 5-6 hours of relief and I don’t really feel the severe shivering from fever or anything like that. Really thank God for His grace on this, too. In some ways it was a relief to me, as having a fever could mean that the body is starting to put up some resistance in fighting the infections, meaning my white cell count is increasing steadily. But at the same time, it could also be due to the fact that the infections are getting very much stronger and the antibiotics could not fend them of. Not taking any chances, the doctor added more antibiotics per day (he added one antibiotic that was taken every 8 hours and later another 4 small bottles that were taken once a day, totaling up to 11 bottles of antibiotics a day) to be dripped into my body starting from the 3rd Thursday. Why the 3rd Thursday you may ask and not instantly when the fever started to return? Well, from what I overheard, the nurses did not report to the doctor about the fever returning as they assume that since I am already on antibiotics (the ones that were dripped into me when I got my high fever) they shouldn’t worry much. Miscommunication again I guess, ha-ha. But still, all in all, thank God that this fever was rather mild, and most of the time I don’t actually feel the effects of having a fever.

But then again, it wasn’t really smooth sailing all the way. During the 3rd Monday night, somehow the anal infection became insanely itchy till the point that I almost when crazy since I couldn’t actually sleep through the whole night. I tried every thing I could think of to ease the itchiness: putting lotions, washing, trying differing positions while sleeping, scratching but all to no avail. At most I could only have 1 minute of relief and the itchiness would return. The lack of sleep because of this made me cranky and I started to feel really fed up of being in the situation that I am in, and somehow I began to question God why in the world must I go through all this suffering. But just when I started to think of all the questions, I realized that I shouldn’t have done so and asked God for forgiveness… God never make mistakes, and He knows what’s best for me. After checking the Internet the moment the sun rises the next day, I realized that there were certain creams just to ease this kind of irritation, and asked my mom to go to the pharmacy to get them for me, in which the doctor later gave me another more powerful version of the cream plus a pill that reduce itchiness and that helped to ease the irritation.

This time around I only had one blood transfusion and that was on the 3rd Thursday midnight. Two packets of blood were transfused to me at midnight because it takes a really really long time for the blood to come from GH (there’s a blood bank there I think) even though the order was given in the morning by the doctor plus the fact that they must make sure the blood isn’t infected in anyway and it matches my blood type, that’s why if you really need lots of blood fast, go to GH. The one thing I really don’t like of blood transfusion would be the fact that it takes around 6 hours minimum just to finish dripping in one packet of blood, and two packet would meant 12 hours. Being bounded to the drip isn’t very pleasant as it restricts my movement greatly, the antibiotics that took around 30 to 45 minutes were already frustrating at times, so 12 hours was arghh!!!! Thank God that at least they dripped it at night, so that reduces around 8 hours of feeling bounded ha-ha. Oh, another thing to thank God for would be that the rashes (it’s a different one) that appeared because of the blood transfusion did not cause any itchiness this time around, compared to some other times when I have transfusions of the blood which made me scratch my skin non-stop. During the transfusion though I mysteriously vomited twice, once during the night and the other early morning, the doctor did not explain why that happened, so don’t expect me to know the reason then. Still, thank God that everything went back to normal after the blood transfusion was complete.

Was starting to get quite depress due to the fact that I was expecting to go home around the late of the 2nd week and the start of the 3rd week, and as each day pass when they do my blood check on alternate days, the doctor would tell me my white cell count still hasn’t gone up yet, ah, depressing… was thinking I could have gone home much earlier and made it for the VBS in time. Thank God though, that since I have written this blog, I actually manage to have some reference of how long it took the last time I had this treatment, which was roughly around 24 days, so in a way that comforted me as it should take at least around 4 weeks compared to the last time if I were to be discharged, and that gave me a glitter of hope in some way. My mom also had a journal writing my days in the hospital too, hers was very much detailed, and thank God for that as it allows me to tackle some of the problems that I was supposed to face during this chemotherapy. One of them was the mouth ulcers, which I think wasn’t really ulcers but fungus growing out since it dropped off like mushrooms when my white cell count when up the last time. Back then I must have not kept my mouth clean enough when my white cell count was low and was subjected to the mouth ulcers because of that. It was really terrible to have those ulcers as breathing was difficult as it hurts; when I sleep, saliva comes out and that really made me unable to sleep properly and eating a simple meal seems as difficult as climbing a mountain cliff. Mind you, it’s not one or five ulcers, but the number of ulcers on my tongue alone was uncountable. White spots were all over the sides of my tongues, and in order for me to actually eat I normally need to put an anesthetic solution to numb my tongue so it becomes bearable. Through that experience, this time once I was staying in the hospital I kept rinsing my mouth immediately after food with antiseptic mouthwash to prevent it from being infected. There was also this salt thingy that the doctor prescribed for me to gargle, one of the nurses told me that it was used to prevent the infections of the mouth but somehow I remembered the last time I had this salt thingy, it was used to make sure my mouth don’t get too dry and irritate my throat. Not taking any chances I religiously gargle the salt thingy twice a day. It was only during the day that they stop giving me the salt which I asked another nurse why I don’t need it anymore, in which she explained to me like how I remembered it. Gosh, got conned again by them. But still, I really thank God as this time I did not have any ulcers in anyway, for I know that no matter how hard I try to protect myself, there’s still a percentage for me to get my mouth infected, and it’s only through God’s grace that I could avoid it, thus reducing the amount of suffering I must endure… YEE HAW!!!! At least I could enjoy the pleasure of breathing, eating and drinking.

Well, the white cell did start to steadily return of the 3rd Friday, rising from around 0.3% to 0.5%. Yeah, not much, but it’s a start ha-ha. Though it is encouraging to know that my white cell count is going to return to normal soon, there was one thing I really dread. Because I didn’t have enough white cell then, the anal infection which I mentioned did not hurt in anyway, as there are no white cells to fight the infections, and the infection kinds of like just stay there, unable to be healed (something like those who have diabetes). But once my white cell count goes up, the white cell will begin attacking all the viruses and bacteria and that caused my anal infection to hurt like CRAZY (on this 3rd Friday itself). This really gives me a great respect for all the mothers out there, for if I am woman I would have died during child birth as even this I couldn’t stand anymore. It was as if a knife is stabbing the wound repeatedly, and without any medicine it would be impossible to find relief. And through this experience I really thank God that I am born in the modern world and not during the medieval times, when anesthetics weren’t easily found. At first I put some anesthetic lotion on the wound… no effect; then I asked the nurse to give me some pain killers… still no effect; finally around 1 in the afternoon (I started to feel the pain the moment I woke up in the morning) when I could take it no longer, I asked the nurse if there’re any methods left to reduce the pain, and the nurses told me that the only option left would be an anesthetic injection. ARghhh, no injection please! Was starting to think twice when the intense pain reminded me that I shouldn’t hesitate anymore, and after having the green light from my doctor, I had the anesthetic injection. Of course the injection hurt quite a bit, but compared to the pain of the wound it was nothing, an immediately right after the injection was done, I could feel relief, and finally mange to sleep in peace once again. I did not have any proper sleep since the day the wound started to become itchy, which later started to increasingly hurt as each day pass till this Friday, was waking every now and then most of the night either because of the itchiness or pain. In addition to not sleeping well, it was also due to the fact that the injection will induce drowsiness, but it was good for me, as I really wanted to sleep. In fact, I manage to sleep so well that I snored and ask my mom not to disturb me in anyway, in fear that I might not be able to sleep like this anymore (or perhaps because the injection was actually some kind of morphine drug like thingy, as I kind of feel ‘high’ before I slept). Since the time after the injection the pain became bearable, and I thank God for that as I don’t want to have another injection anymore (even after a day it made my right legs felt numb). The next day and the after that though, I need to use the bathroom, and yeah, the red sea once again appeared, pain like crap (couldn’t sleep on one of the days because of the pain), but then again, thank God was bearable enough to not have the drug high injection ha-ha.

On the 3rd Sunday, my white cell count went up to 1.5, really thank God as on that day I could stop eating Panadols because the fever didn’t seem to come back. Was a bit disappointed again the next day as the white cell count dropped to 1.44, I was like: “what in the world? Shouldn’t it be just going up all the way now?” Then again, didn’t really bother much as I had no fever, meaning all seems to be going well, and that was more than enough to thank God. A surgeon was also send by my doctor that day to check the anal infection that I had, was glad that the doctor said that all is well; the only thing that could heal it is time. Phew, don’t need any surgery then, ha-ha.

After the 4th Monday, my white cell count started to increase exponentially (I think that’s the term), went back up to 1.5, then 2.5, 4.44, 7-point-something and finally manage to be discharged from the hospital on the December 2nd, which was a Saturday. Had a total of 16 Neupogen injections on my stomach to increase my white cell rapidly (started on the 2nd Monday and ended on the 4th Tuesday), was more than what I had expected honestly, the last time I had this treatment it was around 8 times only I think. Painful when injected but wasn’t too bad later, though one part of my stomach got swollen because of the lack of blood platelets.

On the day that I actually got discharged I had one more task to do before I was home free, that was to wait for the same surgeon to come and check my infection one more time just to make sure that all is well. Hmm… waited for him for like 3 hours, but he didn’t come; then nurses told me that he won’t be coming as I am already discharged, and I would need to see him at his clinic (that’s another block in the hospital). Was thinking, is it better to make and effort to make sure everything is all right, or just go home straight away and hope for the best… I chose the latter ha-ha! Who cares man, I could go home!!! WOO HOO!!!! THANK GOD!!!

It wasn’t exactly smooth sailing as I got back though (should have at least see the surgeon ha-ha), just before the day I was discharged I had another trip to the bathroom and I think I had an anal tear this time (the infection was cured). So yeah, got home, suffered around a week with the pain, but still, it was somehow bearable and being at home beats staying in the hospital a million times I guess. Really thank God for being able to be at home.

So, yeah this is my report for the whole of the ‘blue’ treatment during the month of November. It took a total toll of 27 days. Watch almost every Sean Connery’s and friends “James Bond” there is and realized how lame it was compared to the James Bond series nowadays, also reminded me why I said that Pierce Brosnan’s ‘Golden Eye’ was terribly boring when I was young (when DVDs haven’t existed and we were using LDs- the CD that has the size of a dinner plate), though after that his James Bond role got better. Watched ‘High School Musical’ on Disney Channel and thought it was amusing, though I remembered that the plot was reused from another Disney Channel Movie (that’s what happens when u watch every Disney Channel movie there is for the whole month). Also watched cartoons series like “Emperor’s New School, Kim Possible, Totally Spies, Lilo & Stich” for most of the days (oh yeah, I only have Disney Channel for the cartoon channel in the hospital I was staying, that explains all the Disney thingy). Was really surprised (and thanked God) when somehow my Star Sports (my only sports channel) became ESPN (don’t ask me how) when Manchester United was having a match against Chelsea (was disappointed with the score though, should have watch Arsenal or Liverpool instead ha-ha). And the reason why I watched so many movies? It’s the only entertainment I could have that uses up the least energy, playing computer games and going online was a hassle then, I won’t consider it as a joy (it uses more energy). But I think the main reason was because of the ultra lousy internet line, playing DotA, I couldn’t complete more than three matches out of like 20 because I kept getting disconnected (and everyone started saying I am a ‘noob leaver’, wait let me rephrase that ‘Pro Leaver’ as you can’t have two negatives), and there are times when I couldn’t get on the net because of some weird error messages, which the helpline has no idea what it was, and in fact he was also experiencing the same problem (I was like, what in the world, aren’t you like the admin or something), goodness, not worth my 24 bucks a week, but thank God that at least I could like chat with some people during my isolation though, ha-ha. Gave me some sanity in the midst of all the chaos that was around me.

All in all, really thank God for bringing me through this whole treatment. If compared to the last time, it was easier to bear (didn’t had the suicide intend). One thing I really thank God during the treatment was for teaching me patience. The pain and all the physical suffering was hard to bear, but during that time the one thing that really bothered me was the frustration I had because I wanted to go home. Each day I asked the doctor how my condition was and whenever he said that my white cell count hasn’t rise yet, I began to have this intention to ask God why. The frustration became worst when my white cell count started to increase but yet it took me a week for me to go home. During this period of time I realized that in all things God has the power and authority to do things at His time, for He knows what’s best. We may think otherwise, but who can phantom God’s wisdom? Only God knows what’s going to happen ahead in the future. And in all things, I know God doeth all things well.

Really thank God for my mom too, for taking care of me during these 27 days. And for listening to my senseless ramblings and watching all those cartoons with me. Not forgetting for cooking porridge and Mee soup for those 27 days, and giving me comfort and some sanity.

All praise and glory to God, for persevering my life, for bringing me through this tough times by giving me peace and comfort, and for giving me Jesus Christ that I may enter His throne of grace so freely through the forgiveness of sins. Thank God for your love, Amen.

Thursday, December 21, 2006

1st Anniversary...

Hmm, really sorry for not posting about what happened during my treatment in the month of November… I still have a quarter more to go… but I got to post this first as the 21st of December was a significant day for me somewhat.

Though it isn’t something most people would try to remember, today is first day I got admitted into the hospital and when everything started to happen.

Last year on this present day, after checking my SAM finals on the internet, my plan for the day was actually to go to Pantai for a medical check up, not really to find out what in the world made my lymph node near my groin and neck all swollen, but to have a full medical check up report so that I could go overseas to study. After that I intended to go to Taylor’s to get my final results, certificates and all, and later to go shopping at Midvalley as I didn’t do my Christmas shopping yet.

Well, when I went to Pantai for the check up, the Punjabi doctor said that the swollen lymph node was a concern and that I must be admitted to the hospital in order to be able to determine the cause of it through further test. That point I realized something was going amidst, for the doctor had that dreadful look on his face but he didn’t said anything then, just in case he was wrong I guess ha-ha, and not to frighten me. It was really funny then, as me and mom asked the doctor if we could go to Taylor’s first to get the results, go shopping and come back later, which the doctor replied (in Punjabi accent): “No! No! Must stay in the hospital for check up, don’t go anywhere.” We didn’t know how serious it was.

So after getting a room in Pantai, I had many test done on me. From the simple blood test, to the X-ray machine, then the Ultrascan in which Jia Harng, my college mate called me just before I entered the machine. Not really sure what was going on myself, I just told him that I had a fever and all, which in the end he got scolded from all my other college mates because of a misunderstanding, as he told them I had a fever when later it was realized that I had leukemia (really sorry ya!).

Well from all the test the ultrascan was the worst…. Watching from movies and all, the ultrascan seems only like a machine where a person just goes in and the scanning process takes place, simple as that. But when I entered the ultrascan room, first of all I need to drink two yellow drinks in order for the scan to take place (thank God the drink doesn’t taste too bad). Problem is, after drinking those I could not go to the bathroom, and somehow out of all the chances I could use the bathroom, I wanted to go then. Goodness, no choice but to hold it in. After drinking that drink too I had the fever; then I did not know why I got the fever, but later I realized it was because of the leukemia, and my body was already in a critical stage though I did not know about it. Okay, after the drink it wasn’t over yet, I got to change to those freaking thin gown despite the fact that I was already shivering with cold from the fever, and later a nurse came with a huge needle which was connected to a bottle of weird stuff. My first thought was: “Please tell me this thing belongs to someone else!” Well, it did belonged to me, and that was the toner so the colors would appear in my report after my ultrascan was done. It really hurt as the toner goes into my system and my body had that weird hot flushes feeling when the liquid when inside. Only after all that, the part in which we always see in the movies take place, where a person enters the machine with a smile and everything was done oh so easily.

After that I remember having two bags of platelets entering my body in the afternoon. The nurses were saying I had dengue, I was like: “Come on, if I have dengue sure I know lah!” But then I was really tired after the entire test (and the leukemia), and did not want to argue and all. Around 4 to 6 in the evening my current doctor came in and told the news to my parents and some of my relatives who were there then (the Punjabi doctor transferred me to him as he already knew what was going on I guess), yeah, it was the first time I saw my mom and dad so worried since maybe the day I almost got drowned in some pond when I was young. The doctor also told me then, that if I hadn’t admitted to the hospital I would die as I would bleed to death. My blood platelet count was 8 while in normal human beings it is 300+. Woahkay, so that answered why I needed platelets (back then I was totally blur in what leukemia actually is). I also really thank God, as despite the fact that I was already in such a critical situation, he still preserved my life and made me feel like nothing wrong was happening, and to think that I was happily having a holiday at China just last week. Phew, thank God nothing happened over there.

One thing I really thank God then, is the fact that despite all the chaos that was happening around me, the peace of Christ was with me. From receiving the news and having the thought that I would die and all, I was glad that God, through His grace and love gave me peace, and I had no sort of fear then. Back then it was like: “Die? Then die lorh, go heaven only mah…” Now when I think about it, I really hope I had that kind of assurance once again. To have no fear in death, knowing that Jesus Christ has already freed me from the curse of both sin and death.

Guess that’s all I remembered during the 21st of December. After that it was a long journey for me, but as they say, it was just a blink of an eye when time flies, and God has lead me through one year in just a flash. Really thank God for all He has done.

Saturday, December 02, 2006

Home... finally!

WOO HOO!!!! OH YEEEEAAAAAHHHHHHH!!!!

Thank GOD!!! Praise His name forever and ever!!! For His eternal grace and love!

Ha-ha, it's really a joy to be home once again.

Anyway, will update what happened during the almost one month stay in the hospital.... errr around this week? i guess, ha-ha too lazy to write now.

So, off I go enjoying the comfort of my home.

Monday, November 06, 2006

2nd Blue

Hmm… let’s see… what should I talk about today…okay…

ARGHHH, I AM FREAKING SCARED!!! HELP ME!!!!!!

Yeah, guess that’s what I am going to talk about. Ughh, going back to the hospital tomorrow, or today by the time I finish writing this post. Wouldn’t really mind if it’s just a light one which would require me to stay at most a week, but this one would be really really heavy, so heavy that sometimes just remembering what happened last time makes me shiver down my spine.

Staying for one month in the hospital isn’t that bad, you can watch television immediately when you wake up; you have breakfast, lunch, and dinner at bed; you can just doze off anytime since you’re already sitting on the bed itself; the bathroom is just 3-5 steps away; and best of all you get 24 hours service (okay I am being sarcastic here). Staying in the hospital isn’t all that bad, but the side effects, are… torturing, as I can say.

I remember telling quite a number of people that I would rather stand pain than the nausea, but now when I think about it, both are equally bad. Unless I could actually avoid those bacteria and fungus from growing and attacking my body, the pain could be avoided I guess, but that would need a tremendous effort to keep myself super clean, and knowing that I am such a dirty person who would avoid bathing if possible, I don’t know how am I going to do it. But about all that’s going to happened, I guess after this whole course of chemo I would only write what happened, so I could compared to how it was previously during February-March.

It’s during times like this that I realize that humans are just so weak. That’s because I know that I can’t do much to prevent what’s going to happen. And during times like this I know I could only trust in the living God to grant me His grace to go through this whole thing easily. I am asking this of Him because I know that Jesus Christ is real, and He hears our prayers. But even if it doesn’t go as well as I plan, I guess God has His ways. God doesn’t do something and later says: “Ooops!”

Another thing that I really got to learn is to take things one at a time. When I see the list of chemotherapy that I still need to go through, it makes me really discourage, especially seeing the ones that seems so hard to go through. And knowing that it would take around July to complete the whole thing really isn’t good news at all. It seems never ending. That’s why I got to go slow, aiming one course of chemo at a time, otherwise I would really wear out if I keep thinking of the whole list of chemo. Hmmm, this is one time where it’s better not to see the whole picture.

Ah, but I shouldn’t just talk about sufferings all day long, God has been good for the past 2 weeks, giving me sufficient rest and all at home, really thank God for that. But time seems so short when you are actually enjoying… ARGHHH!!!! And not to forget I manage to update my music collection after like centuries by finding some really whacky Japanese songs, well actually around 10. I haven’t been up to date with the songs on the radio for a really long time; the last time I actually listen to the radio for hours would be around form 3-4 when my brother always turns on the radio while studying. Me, trying to avoid doing my homework would always sleep at the bed and hear his radio till like around midnight, and that’s when I start doing my homework because fear starts kicking in. After he went to Australia to study, the only time I actually listened to the radio was during the trip to and back from school/college. That’s why, since then my musically knowledge is like really terrible. And since then most of the time I would only listen to Japanese music which mostly comes from the opening/ending theme for the animes I watched, and it’s really hard to get my hands on other good Japanese music because it’s not like I can hear them anywhere, unless I actually get them and listen for myself, and therefore, my comp can be said is filled with half of unwanted Japanese music or in other words: junk, while the rest that I actually enjoy seems to be only a handful. The weird thing is that I seem to enjoy those really bubbly, whacky, Japanese songs, those that classical music dudes would rather hear dogs barking instead of the songs that I am hearing, guess you get what I mean.

Okay, guess that’s all for today, pray for me guys, need all the prayers I can get to go through the first week, and err the few weeks after, and hope that I don’t get any serious infections that would make everything even worst. If possible I may bring back a picture of the blue chemo, which I am going through for the 1st week, since I already have a picture of the red chemo, but I am not letting it out in public because it’s errr disgusting… you’ll understand what I mean someday. Hmm, if all goes well, guess I may be strong enough to enjoy the Christmas celebration that I missed last year.

Thursday, October 26, 2006

Blessed be Your name~

Phew, thank God that I finally finish eating the chemo-pills on Monday, meaning that the nausea and dizziness would gradually settle down in perhaps a week or so… anymore longer and it would definitely bring a toll on me.

I guess many know that I like playing video-games, but when I am playing games alone I would always prefer playing role playing games as I always love to dwell in a really long story, which those games normally brings. So, really thank God that Final Fantasy 12 was out in stores like around last week. Well, the official released was supposed to be October 31st, don’t know how those pirates ever manage to get the game out that fast. Perhaps it’s a beta version (that would explain some of the really obvious grammar mistakes that a major game company such as Square-Enix shouldn’t make, or perhaps they wanted to make it real by putting it there? Like how most of us speak kacang-Eng-GA-Lish) Yeah, well thank God anyhow as I was able to play it before I enter the hospital in November, at least I have something to entertain me and distract me from all the nausea and suffering. Hmmm… but somehow something doesn’t feel right, I know that we should give thanks to God for everything, but somehow for a pirated disc… hmmm… confusing…

Was really comforted by some of the songs Pastor Siew Teng send to me, especially the song “Blessed be Your name”, since sometimes I really can’t seem to go through what I am going through anymore. At the beginning it was quite easy as things went rather smoothly, but nowadays somehow my body seems really weak to tolerate any of the chemo anymore, thus the nausea/dizziness and all. When everything was going okay, it’s really easy to thank God for everything, but during the times of suffering, it gets really hard to thank and praise God. Through that song, it really encourages me, to thank God in all circumstances, even when the “darkness closes in Lord, still I will say, blessed be Your name”. Somehow I always think that if we could thank God even through our sufferings and pain, it would make God really really happy, and at the same time really piss the devil off ha-ha. And that encourages me to fight on, one day at a time, to glorify God’s name, never losing sight and hope in Him.

Blessed be God’s name, till the end of time.

Wednesday, October 11, 2006

Laughter is the best medicine...

Hmm… really wanted to do lots of ‘normal’ stuff before my long stay in the hospital, but guess I can’t do so because of this nausea, headache and tiredness. Ah, didn’t know that just eating pills can be so hard. Thank God though, that at least I am able to sleep easily.

Well, I was reading the latest entry in Christopher’s blog and was rather encouraged by what he wrote. In fact, knowing that there are people caring and praying for me really is comforting and encouraging, it makes me feel not so alone, and that God’s watching over me even more because of all your prayers.

Talking to Chris was pretty pleasant despite the fact that we were talking about our sufferings during our stay in the hospital most of the time (something that most people wouldn’t want to talk about, since it’s all gloomy and stuff). I guess that’s because having to know that someone understands what you are going through and can relate to what you have been through is comforting. Like, how our freedom were restricted because of the drips we had; how depressing being nausea can be; how we hate vomiting; how drinking hot stuff can give us some comfort from nausea, etc. etc. It’s been a quite a while since I found someone who has experienced and can actually understand what I am going through without explaining lots of specific details (Chris had food poisoning). Example:

Someone: Hey, when you say nausea, how does it feel like?

Me: Erm… it’s like the feeling of vomiting, but not all the time you’ll vomit things out.

Someone: What??

Me: Erm… never mind (too lazy to go on further details).

Ha-ha, just kidding lah, if anyone wants to ask me anything about my treatment or what’s going on in my life just feel free to ask, I won’t push your questions aside or feel frustrated or anything like that. If my explanations doesn’t mean anything to you don’t hesitate to say: “HARH??” Yeah, you get what I mean.

Chris wrote (and some people also said) something about me being really braved going through this sickness and all, but honestly speaking, I can’t say that I am really brave, that I am charging to the front courageously, battling this disease without feeling any fear or frustration. If I were to define someone who is labeled ‘brave’, the person should be able to have a choice to either overcome his or her fears or not to do it. For instance: a young boy (say 4-5 years of age) goes over to the MacDonald’s counter to buy a Happy Meal for his younger sister who’s crying because she wants one, that’s brave, because he actually can choose not to do it, but for the sake of his sister he did it. (Woah kay, maybe that wasn’t such a good example, please leave out the thought of how he got the money to buy the meal, or why are they out at MacDonald’s without their parents, etc. etc.) Okay, a better example would be: A mother risking her life to enter a building that is on fire to save her child. Okay, she has the choice not to risk her life, but she did that for her child, now that’s brave. (Hope you guys get the idea of what I am saying).

So, anyway, like I was saying, I can’t be called ‘brave’ because it’s not like I had a choice to accept what I want to go through or not. When the doctor said it’s time for chemo, is not like I can say: “NO! I DON’T WANT!” If this was a dream, I would have definitely forced myself to wake up by now, and not linger on any longer. Or suppose I was a candidate in some survivor series (okay, either the one trap in an island/jungle or the wrestling one, take your pick), I would have given up half way through when it becomes too tough for me to handle.

Then again, perhaps the fact that I can’t quit is something to thank God for, otherwise, how could I be refine to be more like Christ if I don’t go through suffering? Being human we will naturally try to find the easiest way out of things, at best, things that require no effort on our part but maximum profit to us, even if it means through evil ways. In other words, if I have my way, I would have definitely chose to escape being refined as I wouldn’t want to suffer, but that would mean that I wouldn’t be prepared to do what God has installed for me in the future, as everything God does has a purpose. When you see it that way, then perhaps the suffering process isn’t so bad after all.

Recently when I am going through this suffering, there’s always this weird image or short sketch if you would call it, which comes to my mind that gives me some sort of relieve and comfort. Well, you guys know the story of Job right? Where the devil kind of like bet with God that Job would definitely curse God if he had to suffer so badly. So, it’s like the devil is at first laughing, saying to God: “A man will give all he has for his own life. But stretch out your hand and strike his flesh and bones, and he will surely curse you to your face.” (Job 2:4) So… if I manage to go through this whole process and not blame God or question Him on why must I go through this, and instead thank God and praise Him for everything He has done, that would mean God would win the bet right? And when God wins, He goes laughing merrily at the devil (think something along the lines like how you would laugh when you see Jim Carrey’s comedies) and say: “I told you I would win buahahahahah!!!” And the devil goes away feeling angry and frustrated. Well, somehow from that image, seeing God happy and laugh makes me want to win this battle even more. I guess that’s because as Christians, we always ought to make God smile, or better… laugh out of joy because of us being testimonies for Jesus Christ here on earth.

Then again, really thank God for laughter. For laughter is the best medicine as they say. Sometimes when I feel really down, I would watch some of my old ‘hardcore’ comedy animes to make me laugh really hard till I totally forget about my nausea. (By meaning ‘hardcore’ comedy, it’s those shows where you are better left off putting your brain at one side while watching, as if you try to even apply logic on what’s happening your brain will kinda go cuckoo).

Yeah, so, since I am already half-way there, might as well finish the race. No point giving up half-way, especially since God is always with me, why should I lose hope? And I bet it will be really satisfying when I finally reach the finishing line.